Week 3,4 and now 5: Thursday #BCSM Post: Notes on taking Lynparza aka Olaparib

 

My mom gave me this mug when we visited a couple of weeks ago. Being agnostic, it didn't hit me on a spiritual level, but I really enjoy the quote from proverbs. I might like the bible more if we chucked everything outside the beatitudes and proverbs. Oh and the part where Jesus tells rich people they suck! 

Exciting news I'm on my second bottle of this drug!  One bottle (ie one month) down 11 to go. Taking this drug as prevention against a possible recurrence has given me a deeper respect for those who are living with metastatic cancer who take this drug until it stops working. It's not easy and there have been about three days each week where I want to just stop taking it. However, I remind myself of that old saying, an ounce of prevention is worth a pound of cure. Plus there is no cure for metastatic breast cancer.

Side effectwise, I had too many days of fatigue and nausea and that lead to me not posting for a couple of weeks. This week I am hoping I have turned a corner, the fatigue has been greatly reduced.  The nausea is much less frequent. I tell you what, if I had to pay for this drug out of pocket, boy I don't think I could do it, it's not pleasant to take, it would be hard to justify if the cost was say $100 or more a month. 

Fingers and toes crossed that my tolerance of the drug continues! 

Week 2: Thursday #BCSM Post: Notes on taking Lynparza aka Olaparib

 

Yeah I'm still trying to navigate side effects. I'm starting to wonder if I have anticipatory nausea and if that is even a thing. 

Thursday (361 to go) I struggled with fatigue and then when I tried to take a nap, then I wasn't able to sleep. For dinner we got carryout and I ate too much and didn't feel very good afterward.  

Friday (360 to go) I went for a run and felt good for the run. I made sure to eat small meals/snacks and that helped me feel less queasy.  Overall I felt the best since starting the drug, but then after the second dose at night then I felt more nausea and had real trouble falling asleep. 

Saturday (359 to go) Long run today, 7 miles it was really tough, but it was also really hot so I don't know if it was the medication or the weather. I made sure to practice better-eating habits and drank lots of water. This helps.  I also found a little bottle of peppermint essential oil. I am going to try putting a little on my pillow to help at night. 

Sunday (358 to go)  Day of rest, so no running for me. Hot and humid as can be outside so I spent time in my little pool and took the dog for a walk.  Also went to Aldi to get groceries. I had to push myself to do the grocery shopping since I felt queasy, food didn't appeal to me in the store, which reduced impulse purchases, but that was offset by having the hubs with--he did some impulse shopping! The best time of day was late afternoon/evening. Had trouble falling asleep, which is the opposite of how this drug is supposed to work!

Monday (357 to go) My main focus today is on eating.  I began the day with greek yogurt.  Small meals often are going to be key in me being able to tame the constant queasiness. If I can manage that, then I'll be (knock on wood) golden. 

Tuesday (356 to go) Changing my eating to small meals and snacks is paying off in a big reduction in queasiness. I am finding random foods I usually like have lost appeal, a bummer, but I can handle that. In the late afternoon, I have fatigue. I do not have fatigue at the right time--which would be at bedtime! 

Wednesday (355 to go) The number #1 most common side effect of this drug is diarrhea. For me, this means the number one side effect I will have is the opposite of that, at least I have experience in how to manage that side effect.  

Overall, I feel much better than last week. Thank goodness.  Now to manage the latest side effect, I need to go buy some Benefiber. The Hubs asked if they will be able to do a test to show if the drug is working and I explained to him that there isn't. Monday I have bloodwork to make sure my red and white blood cells are doing well. I don't have much fatigue so I *think* they are in good shape. 

Thursday #BCSM Post: Notes on taking Lynparza

 On Thursdays for the next year (ideally), I will be posting about how things are going for me as I take a drug called Lynparza to reduce my risk of a cancer recurrence. This drug is called a PARP inhibitor here is  very short blog post that give you the gist of what they do.  

Recently a study was done on people like me who have a BRCA 1 or 2 mutation and who had early stage breast cancer that was aggressive and more likely to come back than other breast cancers.  This study found that if people took Lynparza for one year after completing other cancer treatments (surgery, chemo and radiation) they had a lower risk of cancer coming back or a new cancer.  

I read the research and I read articles about the research and in June the American Society of Clinical Oncologists determined that this drug was impactful enough to warrant recommending it for people like me. You see this drug has been around for a while in use for people who have BRCA 1/2 mutation in the Stage IV setting--so it is not new, new. I talked about it with the Hubs and we decided that if I could get it covered by insurance, I would go ahead and take it for the year.  

Then I had my regular appointment with my oncologist and we talked about it. She put in the order for the drug and much to my surprise my insurance is covering it. (surprise because it is new for early stage patients).

Sunday I started taking the drug.  Like I said, I will only be taking it for one year and it is the newest possible way to reduce my risk of recurrence. I thought long and hard about whether or not I wanted to do this. This drug is considered chemo, but it isn't nearly as brutal as IV Chemo.  

Frankly if this drug made my hair fall out, I don't know that I'd be taking it. I take 2 pills in the morning and 2 pills at night. Day one I felt queasy.  Like you would if you were experiencing low grade morning sickness or a little hangover.

Monday Day 2- (364 days to go)  I had trouble sleeping, not a typical side effect.  I felt like I was on the brink of stomach upset all day, but didn't have any stomach problems so that was good. I did my Monday run w/hills. Suprisingly my heart rate was really good during my run.

Tuesday Day 3 (363 days to go) Better sleep. I feel like I am at the start or the end of a cold.  A little queasy, a little tired, about 20% off my game.  Drank coffee and didn't eat too close to taking morning pill and almost wound up w/serious nausea.

Wednesday Day 4 (362 days to go) Slept more than usual. I can tell I have fatigue from the drug, I have to make the effort to stay active or I can feel it will creep up. I am glad this is only for one year and I hope it ensures I don't have to ever take a cancer drug again. 

*****

After next week I will have bloodwork.  I need to make sure to get lots of protein.   

#TheSundayPost Boy Are My Dogs Tired!

 

The Sunday Post is a weekly meme hosted here @ Caffeinated Reviewer. It’s a chance to share news~ A post to recap the past week on your blog and showcase books and things we have received. Share news about what is coming up on our blog for the week ahead.  See rules here: Sunday Post Meme

I thought I was prepared to run a 10-mile long run this week for marathon training, and boy was it hard! The last two miles were rough!  Thankfully next week is a cut-back week and I only have to run 7 miles next Saturdays. I tell you it is the cut-back weeks that give one the strength to continue on with the training.

This week was a busy week, but it was a good week. On the personal front, I had a visit with my oncologist and after a discussion with her, she put in an order for me to take a drug that has been shown in clinical trials to reduce the rate of cancer recurrence for people with BRCA1/2 mutations. This drug has been approved for some kinds of advanced cancer patients, but now the American Society of Clinical Oncologists has recommended this drug for 1 year for early stage people like me that have a high rate of recurrence.  It's considered a chemo drug.

 I was surprised and happy that my insurance is covering it. It's a serious drug and I am hoping that based on my overall health that I will be able to take it w/low side effects. The whole point of doing this is it's an added level of protection. I am planning to track my experience with the drug--since it's just now being used for people like me. I plan to blog about it on Thursdays. 

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Book talk!  There are just a few more weeks left of the summer reading program at my library! I need to keep earning points so I can win a gift card! What I'll be reading this week:

How are you doing How was your week?  Watch anything good? Read anything good? 

One Year Chemoversary! -Don't Call Me A Warrior

I was busy writing holiday cards and baking holiday cookies and neglected to post on the occasion of passing the one year mark of my last chemo treatment. 

December 5th was the last day I got Taxol.  Since then my body has rebuilt itself and hopefully, no random cancer cells are rummaging around. I still have some occasional numbness in my fingers.  I think I am still working on getting to full strength after all treatments. I know my memory is not as great as it was before chemo, I don't think that ever comes back, but I could be wrong. I hope my heart continues to do well and most of all that cancer doesn't return. 

This week I was able to virtually attend an amazing conference, The San Antonio Breast Cancer Symposium.  There are so many doctors and scientists all over the world working to find new safer treatments for all stages of breast cancer.  The best thing to do however is to avoid getting cancer in the first place, so to that end, I say get genetically tested around age 30.  If you carry a known inherited mutation, then you have time to decide if you want to do any preventative surgery or additional monitoring to avoid having cancer in your 40s, 50s, etc.  Once the cancer cat is out of the bag, then you are always at higher risk of it coming back or a new cancer showing up, and don't forget all impacts of side effects from treatments leading to new and not exciting, medical conditions. 

And so ends my PSA.  Here are some cookies--a feast for your eyes!   Now the warrior thing, personally I, and many other cancer people I talk to, aren't fans of the war/battle framing of disease.  We are all just people trying to live our best lives, if we could get in the ring and actually battle cancer and defeat it we would, but that's not how it works. 

I was thinking about better descriptive words for people who had/have cancer and I've come up with an idea for those of us who are out of treatment and hoping it never comes back.  

            * Call me a NEDder.  That's no evidence of disease. This is where I'd like to be for the next four decades! 

I hope you and yours stay cancer-free for all your days because cancer is extremely inconvenient, annoying, and not fun!  If you or anyone you know is looking for support check out:

A website for those with hereditary cancer risk

            

For Breast Cancer People, Caregivers and those who are worried about Breast Cancer

One on One Support from Imerman Angels

The #BCSM hashtag on Twitter

Guess Who's Done With Radiation?

Yes, you are correct! Today was my last radiation treatment. I hope to not ever need to repeat the experience. If you were to see me, you might be disappointed that I don't seem thrilled.  I am, it's just that I am still dealing with a stupid cough from a dumb cold.

Rest assured, should you or a loved one ever need radiation, the most trying part of the experience will likely be just the day in day out drag of it all. Fun radiation fact, nurse Hope told me today that radiation continues to work in your body for two weeks after you finish treatment.

I would like to take a moment to brag. Today, the technicians told me- and it was not for the first time, that I have amazing skin and in fact,  technician Theresa said my skin hand held up wonderfully and she has only seen a handful of patients that looked as good as me by the end of the treatment.

I said to The Man: "Apparently my body is made to really ace cancer treatments." He looked at me like I'm a few cards short of a deck.

Would be very nice if my body could also like not allow cancer cells to hang out and build themselves into a mass again. I've already committed to doing my part through eating healthy, regular exercise, and not taking up vaping; I just need my biology to also commit to staying cancer free!

Treated myself to a celebratory Mug Cake courtesy of  Becky McNeill in one of my Snoopy mugs. 

Now 12 days and I'm back at the hospital for a preventative Bilateral Salpingectomy  What a February, eh?

Happy First Friday of February 2020!