Thursday #BCSM Post: Notes on taking Lynparza

 On Thursdays for the next year (ideally), I will be posting about how things are going for me as I take a drug called Lynparza to reduce my risk of a cancer recurrence. This drug is called a PARP inhibitor here is  very short blog post that give you the gist of what they do.  

Recently a study was done on people like me who have a BRCA 1 or 2 mutation and who had early stage breast cancer that was aggressive and more likely to come back than other breast cancers.  This study found that if people took Lynparza for one year after completing other cancer treatments (surgery, chemo and radiation) they had a lower risk of cancer coming back or a new cancer.  

I read the research and I read articles about the research and in June the American Society of Clinical Oncologists determined that this drug was impactful enough to warrant recommending it for people like me. You see this drug has been around for a while in use for people who have BRCA 1/2 mutation in the Stage IV setting--so it is not new, new. I talked about it with the Hubs and we decided that if I could get it covered by insurance, I would go ahead and take it for the year.  

Then I had my regular appointment with my oncologist and we talked about it. She put in the order for the drug and much to my surprise my insurance is covering it. (surprise because it is new for early stage patients).

Sunday I started taking the drug.  Like I said, I will only be taking it for one year and it is the newest possible way to reduce my risk of recurrence. I thought long and hard about whether or not I wanted to do this. This drug is considered chemo, but it isn't nearly as brutal as IV Chemo.  

Frankly if this drug made my hair fall out, I don't know that I'd be taking it. I take 2 pills in the morning and 2 pills at night. Day one I felt queasy.  Like you would if you were experiencing low grade morning sickness or a little hangover.

Monday Day 2- (364 days to go)  I had trouble sleeping, not a typical side effect.  I felt like I was on the brink of stomach upset all day, but didn't have any stomach problems so that was good. I did my Monday run w/hills. Suprisingly my heart rate was really good during my run.

Tuesday Day 3 (363 days to go) Better sleep. I feel like I am at the start or the end of a cold.  A little queasy, a little tired, about 20% off my game.  Drank coffee and didn't eat too close to taking morning pill and almost wound up w/serious nausea.

Wednesday Day 4 (362 days to go) Slept more than usual. I can tell I have fatigue from the drug, I have to make the effort to stay active or I can feel it will creep up. I am glad this is only for one year and I hope it ensures I don't have to ever take a cancer drug again. 

*****

After next week I will have bloodwork.  I need to make sure to get lots of protein.   

On Mindfulness Based Stress Reduction, Welcome to The Worry Bar!

 Hi There! 

This is the first in a series of posts about anxiety, post-cancer treatment life, and coping skills. I'll be posting them on Thursdays.  Please share or comment below if you like! 

Ivy starting to regrow on one of my top five favorite trees I run past all the time!

Welcome To The Worry Bar! 

During the month of March, I took an MBSR virtual class. MBSR stands for Mindfulness-Based Stress Reduction. However, when I say it in my head I always read it as Mind Body Stress Reduction. This is also a decent description. During week three of the MBSR class, the instruction focused on Mindfulness-Based Cognitive Therapy and that apparently is my jam. 

One very helpful tip I learned was that thoughts are not facts. This has become my little mantra for all the times when my random thoughts start to get out of hand and illogical worries start circling in my brain. Now instead of getting completely stuck on the road to panic; I say to myself: "Thoughts are not facts." Yes, technically some thoughts are facts, but in the realm of my rambling brain, they are mostly not facts—especially if they relate to worrying. 

MBCT also focuses on reducing aversion. For example, if you have a worrying thought, and you try to shut it down or push it down with ‘be positive! think happy thoughts!” —what happens is you spend more time pushing that thought away than if you would just allow it to be. You don’t have to give it attention, just acknowledge it, allow it to exist in your mind, and then go about your life. It sounds too simple to work, and yet…It seems to work?!? 

Using my imagination I created a bar in my mind. Currently, it's a seedy dive bar. Dark interior, surly patrons, and a limited menu. I named it “The Worry Bar”, I know, not very creative or punny. Maybe later I’ll give it a nice alliterative name when I’m better at  MBSR and MBCT and have some room in my head to breathe and be happier. 

All thoughts are welcome at The Worry Bar. I’m the proprietor and sole bartender. It does have a lovely glossy mahogany bar with well-worn leather stools and then there are four top tables with captain's chairs. Along the left and right sides are empty booths with cracked vinyl seats and Formica tables. Normally there are only a few thoughts hanging out in the dark, dank space of the bar, and oh did I mention,  the jukebox is broken. I am hoping as time goes by I might be able to give it a remodel, put in some new lighting, clean the windows, and have it become more of a gastro-pub or a craft brewery. I want to have lots of fun happy thoughts who are enjoying fried pickles and freshly brewed IPAs. Or if it’s summertime, iced lattes with a nice charcuterie platter and a bottle of perfectly chilled Riesling or a fresh lemon shake-up. That is however too hard for me to contemplate right now. 

Currently, I have Scanxiety (anticipatory anxiety based on an upcoming medical scan) just hanging at the bar nursing a kombucha. She’d like to have a beer, but I’m the owner here and she doesn’t get to pick her drink. She can stay as long as she wants to, but I’m in charge of the menus so it’s kombucha and stale popcorn for her.

 

Tomorrow I am scheduling a CT scan which is routine and is the best current method of surveillance for me. I had a lot of treatment and am doing all I can to make sure my body is as healthy as it can be for decades to come; so I don’t want to potentially undo that work by not having the routine checkups because they stress me out. All that is to say that scanxiety may really start ramping up once I make the appointment tomorrow. That's why I decided to take the MBSR class in the first place, I knew I had to schedule a scan for late March and I wanted to try another non-medicinal tool to manage my fears. 

When I get a handle on my thoughts, The Worry Bar is going to have big soft pretzels and super zesty beer cheese.